Traveling abroad with a rare disease that can get critical very easily is not obvious.

Before our daughter with MCAD deficiency was born (she is now almost 2 years old) we used to be real globetrotters. We had imagined a life where we would show her the most beautiful places on this planet. But now we have become somewhat reluctant. Long travels, food you’re not used to, it can quickly lead to a problem.

What are your experiences with this?

Have you ever have to use the emergency letter your doctor gave you? What were the reactions?